Being Whole With Ankylosing Spondylitis
I have to admit that I rarely feel whole. I know my body is physically whole; in fact, I am in better health today than I was twenty years ago. In the past ten years, I lost 160 pounds, and I have more stamina and more good days than I have had since I was diagnosed with ankylosing spondylitis (AS) and rheumatoid arthritis (RA).
My joints are still swollen, and my hands still hurt. I sleep oddly if at all, and each day seems like a struggle. It is not that I cannot do those things. I can play with the grandchildren, I can pedal my bicycle, I can walk on the treadmill, but all the time I am doing it I know, I will pay tomorrow. I will be sore and stiff, and I drag like a man who has not slept for a year. It is that second day that causes the issue.
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I hope that your every other day pattern improves. It seems like your good days are really good, but the pendulum swings back the other way equally. That’s not so great.
Phyllisa: Thank you for the kind wishes. I would say overall I am doing pretty well. But as you know when it turns it can get ugly. The key as you say is to keep the up days going. Sheryl does a great job of helping me do that. I hope you are well.